Its transforming my body and doing deeper healing. Im so sorry about your struggles with IC or lichen sclerosis and so glad you found relief!!! Its tough to diagnose, and though treatments can make life with it better, theres no cure. The pain ranges from mild discomfort to severe pain. as I research and have studied for decades to find out the best to take especially at the age of 69. I thought I was going crazy but your article shed so much light and helped me SO much. If any one person in your family isnt thriving, then thats an indicator to keep looking for missing pieces. Your husbands concern is a good one. Long story short, I am now seeing a FM and we are getting to the bottom of this. But I wasnt sure if it would reduced urinary frequency? I eat a very clean diet, exercise hard 5x a week and take an array of very good supps. Did you wait to start the probiotic supplements? I have 8 children, so though youve given me much hope and direction with the GAPS diet, my husband is wondering if its good for all my children to do the diet- if it will provide the energy and sufficient nutrition for them. The medical community considers IC an incurable bladder disease. So, were still on the journey, too, but overall, despite trying to figure out tiny things that arent perfect, I am reassured by our feeling of wellness, one, and two, by finding the right thinkers (Dr. Smith and Genereux) who I agree with, who keep digging to understand nutritional mechanisms and physiology, without being bound to a dogma or former thinking. I sent a message, but have not heard back. I never thought I would be reading about IC again after being symtom free for 18 years, maybe 1x a year I would have a very mild flare that would last about 2 days and be totally gone. Tangentially, many of you email me about which supplements can help to heal leaky gut and IC. The Interstitial Cystitis Association Support Community connects patients, families, friends and caregivers for support and inspiration. WebInterstitial cystitis is one of the many health conditions linked to histamine intolerance. Im nursing my baby and finding a huge milk supply drop when I cut out too much food. Yes, this is common for anyone with IC or leaky gut, because the HPA axis is affected and often the thyroid, too. Because we respected that and kept them out of his diet, he has the now the healthiest gut among us. Aloe Vera for Interstitial Cystitis. But, the spasms are quite severe. 1 tablespoon raw honey or organic agave syrup, optional 1 tablespoon safflower, grapeseed, or coconut oil; cold-pressed/organic preferred 1 level teaspoon pure MSM powder 4 cups cold water Have a clean quart jar and lid handy for each quart of milk being prepared. LOL, Im happy with that nickname, Linda! The links wont work for me. There are also a handful of other options that may be beneficial as well. But I guess Im wondering if I try to go by my bladder symptoms?? And you will find new favorite foods! What oils do you use for cooking if not olive/coconut? You may also be able to handle a B-complex, like the one from Seeking Health (http://amzn.to/2oAKz33), or their D3 + K2. Thank you so much for this post! I have been going through IC for 6 years. Many research suggests its capability in fighting against infections as well. Make a few of these then put them in a plastic container and freeze them. Hands down, the supplement that helped to heal my leaky gut more than any other was NAC (find this at your local natural foods store, or check availability online). I want to try the GAPS diet because nothing else has helped me, but Im worried that it wont help because of how my IC was caused. Carroll (or simply the Carroll) Test. Heat/Cold Therapy. Required fields are marked *. Bladder wall flares react well to heat as do muscle flares. I am wondering sistadana how you cured yourself. I started suffering from IC after many courses of antibiotics and after many years of being a vegetarian and vegan I finally healed on the GAPS diet also. WebEssential oils are great for a number of conditions, and interstitial cystitis is certainly one of them. Depending on the type of flare, heat may be more effective, or cold, or even a combination of both. Hi Teryl, I see that you contacted me via email. I have had similar healing from visiting both LA and the Bahamas. It must be IC even though she hasnt told me yet. Ive been doing it for a few weeks now and felt almost instant relief, although I know real healing will take a very long time. Also, If you have SIBO and you heal from SIBO then per Siebecker you will heal your villi and be able to absorb fructose again?? I also had a Skype consultation with him. No other syptoms, UTI tested negative. Its one of the absolute worst diets to go on for IC. It might even be closer to 50/50 but no one really knows. Hi Sarabeth, good to hear updates and that the pork omission has been so noticeably helpful. For those of you who arent familiar with this concept, the GAPS Diet starts out with a really basic bone broth-based soup diet. WebInterstitial cystitis is one of the many health conditions linked to histamine intolerance. Despite this, you can still arm yourself with facts and treatments to keep symptoms in check. Also, to clarify, not everyone with IC will have fruit as their food intolerance. Question: If one has a fruit intolerance would they be able to handle coconut oil or ACV applied to the skin? Take a bit of coconut oil and shape it into a small ball (maybe 1/4 to 1/2-inch across) quickly before it starts to melt. Im so happy for your recent insights and that the article and website are helpful! I read it and thought I would give Dr. Zeff a call. Congratulations on your new book!! Can you have your intolerances now ? Im starting to read up on this since recently been diagnosed. Now its back. Above all, meditation and prayer always inspire hope and self-healing. Poor dietary choices, overuse of antibiotics and not being breastfed are the three most common causes, especially when they occur in conjunction with one another. Sometimes the feeling that I need to go passes other times it doesnt and if it doesnt then Ill go to the bathroom. I do avoid fruit based skin products, but if something has a little fruit, like my shampoo, I seem to be okay. Im glad you have a good new doctor. Medical doctors say there is no cure for IC. If I couldnt introduce a food on the next stage then Id stay put. I ate coconut oil for a few days and seemed to be fine. Im really missing the coffee (I only drank one cup a day), Hi Candace, yes, I can now have coffee without having any IC issues. I was left in absolutely excruciating pain after 4 rounds of antibiotics that I was given to treat the uti that I had. I do put coconut milk on my porridge in the morning. The medical world still doesnt understand the cause of IC, which is why their diagnostic processes vary and continue to evolve. How did I figure this out? I really appreciate what you said. Then one day he, ignoring it, went to Wendys and got a frosty. (its a root; you peel it and slice or cube or eat whole; it tastes like apple + mango; its sweet and juicy etc. I am again waiting for the Elmiron to take full effect. But: due to all the experimentation, we discovered that the baby is currently intolerant of pork. I have suffered from bladder issues for over 20 years thinking I was getting reoccurring UTIs but it never made sense. Then it wont burn the lining of your bladder and urethra! Grain free for a year. I just read this today and happen to live in the Pacific Northwest just north of Bellingham and yes symptoms much worse in the colder winter months. Except, I finally noticed the tissue near my urethra had a white patch/streak that decreased when my symptoms were less and increased in size and noticeability when my symptoms increased. I do not feel bloated anymore and Im actually able to work out again. I am so glad you are better. Thanks Megan! Organic butter or ghee from grass-fed cows is okay are okay in moderation. Glad youve found something natural that works. Ghee can be Yes, happy summer and fall! What kind of tests does Dr. Zeff do? Look forward to saying I am healed! Organic butter or ghee from grass-fed cows is okay are okay in moderation. Heres a good reliable one: https://amzn.to/3Jf7slW I am not a doctor, but from my personal experience, this might be a gentle and more effective option to consider. You can do this! It is important that you dilute your chosen essential oil with a good quality carrier oil and many sufferers of interstitial cystitis recommend virgin coconut oil for this purpose. 65% is a conservative number, likely higher. But my mom prayed & prayed that i would find a doctor that would tell me that I was going to get better & that I wasnt going to have IC forever & I finally found him because of this article! Have soup with a grain-free or gluten-free muffin; and soup becomes fun and great! I need to find me again. Ill be interested to read more about the ozone gas. I was a vegetarian for 10 years and the thought of meat and meat fat totally grossed me out. Dont give up. I have had the blood test done for foods, and the saliva test. Can i ask what food allergy/sensitivity test did you take that showed you are unable to eat fruits? You can easily unsubscribe from our mailing list at any time by clicking on the unsubscribe links at the bottom of each of our emails. Make a few of these then put them in a plastic container and freeze them. HI, does acidic drinks increase risk developing IC? Blessings to you, too! One additional thing to consider now, though, is the new Vitamin A Detox diet. The nutrients in foods help strengthen your immune system, heal wounds, stimulate nerve transmission, keep your blood flowing normally, and promote overall health. I was unable to eat fruit for years because I would lose my voice and respiratory distress. For decades until 4 yrs ago I would gulp down black coffee and caffeinated cola all day along to stay alert at work since I have suffered bad insomnia night after night. Mg is a wonderful remedy for spasms and sleep issues. I understand the theory is that we dont make and never will make the enzymes needed to digest these foods. Or just .. Im glad its not more prevalent than it is; and yet too many Americans suffer from it. Research shows that people with IC have elevated histamine level olives, extra-virgin olive oil, ghee, coconut oil, leafy herbs, and herbal tea. Coffee (caffeinated and decaffeinated), tea (caffeinated and decaffeinated), soda, alcohol, citrus juices, and cranberry juice. ), but she had a tragedy in her family and even though she is working, I feel she is not all there yet. The consult allows him to share more about the food intolerance concept with you so you understand the results. Im needing a change because I cant live like this while caring for my toddler (urgency and frequency) I am afraid to begin a full diet diet as I am still breastfeeding and we are ttc. Re question 2, did you call Dr. Zeffs office? As I ran to the bathroom, I felt without a doubt that I knew the cause. When our entire familys diet changed to help accommodate my daughters dietary needs (no wheat/gluten in the house at all, and no processed foods, though the rest of us didnt fully do GAPS ourselves), my symptoms WAY improved! Melissa, I have so many of the exact symptoms you described including the allergies. That piece of information is bigger than IC and its symptoms. Like to go as natural as I can. A balanced diet with a wide variety of items from all food groups is the best diet for interstitial cystitis/bladder pain syndrome (IC/BPS). What could I use if not coconut/olive? It is also the best diet for everyone. Now I notice if we travel and I eat wheat and processed food for several days my symptoms will sometimes flare back up. Thank you! . Any suggestions? This is the first time Ive ever heard someone elses story that resembled mine, so again, thank you for sharing. Hello Megan. Never had issues before that but it came all the sudden and it was HORRIBLE! SO much love and good health to you! Ghee can be I realized that we had zoomed through the first stages of the diet too quickly. Be patient with yourself. Hi Diane, yes, and I have some pretty important tips in this recipe post: https://eatbeautiful.net/2014/07/23/how-make-bone-broth-avoid-rancid-fat/ I dont ever buy it. I sent for the blood test and am anxious to see if there is something I have been missing that could be the link toward complete healing in this area. Short term, the vegan diet offers a wonderful cleanse for many, but long term we are omnivores. I know I have Histamine INtolerance and disbiosis. Claire_A ICN Member Join Date: Jan 2011 Posts: 385 Tweet #3 I wondered how Id do with say, coconut oil. I love eat small meals throughout the day, boiled eggs, l/f Mozarrela cheese, salad with carrot,zucchini, lettuce cucumber with some dried chives, dill weed and rosemary, paremansean cheese and 2tsp. It can be all so overwhelming where to start. 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